Lichen Sclerosus Priority Setting Partnership

We are delighted to announce the launch of the Lichen Sclerosus Priority Setting Partnership!

There are many uncertainties about the management of lichen sclerosus in men, women and children. There is a great need for further research into the diagnosis, treatment and prevention of this condition.

To address this, the James Lind Alliance Lichen Sclerosus Priority Setting Partnership (PSP) has been set up to identify and prioritise research questions that are important to people with lichen sclerosus (including parents of affected children) and health professionals involved in their care. The aim is to produce a list of the ‘Top 10’ unanswered questions to be addressed by future research.

The project is funded by the British Society for the Study of Vulval Disease and co‐ordinated through the Centre of Evidence Based Dermatology. Further information can be found on our webpage.

We are asking people with experience of lichen sclerosus, as a patient, parent, carer, partner, and health professionals involved in the care of people with lichen sclerosus, to complete a short survey and give us their views. The survey will take no longer than 10 minutes to complete.

Click here to go straight to the survey