e-bulletin

Welcome to the BSSVD newsletter which we hope to send out 2 or 3 times a year to keep members up to date with what is going on. If there is anything you wish to contribute we are always happy to hear from you. Hope you are all enjoying the summer months.

Sue Cooper Chair BSSVD

Your New Council

Welcome to new council members: Isabelle Hay, Antony Hollingworth, Claire Bailey, Tor Swale and Ursula Winters.

The Officers

President: Jennifer Yell
Chair: Sue Cooper
Secretary: Christine Bates
Assistant secretary: Eman Toeima
Treasurer: Ursula Winter
Website: Abigail Kingston

List Of Vulval Services On The Website

Please take some time to check that your service is listed on the website (CLICK HERE). This is highly valued by patient support groups and frequently visited. Please also check the clinics in your vicinity. We are keen to ensure that this list is up to date but we are aware that some services may have changed due to retirements etc. Please let our website administrator (mike@bssvd.org) know if you spot any errors. Please also list your paediatric service if you have one.

Next BSSVD One Day Meeting: Sheffield

Save the date. Friday 10th March Sheffield. The BSSVD 2017 Annual Meeting will be held at Hallam Hall, Sheffield Hallam University City Campus, Sheffield UK. The programme offers excellent speakers covering a variety of topics. Registered delegates are invited to submit abstracts by the deadline of Friday 10th February 2017 for consideration by the programme committee.
All booking details and the programme can be found on the BSSVD website.CLICK HERE
Put the date in your diaries!! We look forward to seeing you.

Julia Palmer
Local organising committee

BSSVD Represented RCOG World Conference Birmingham June 2016

The BSSVD is recognised as a specialist society by the RCOG. At the recent annual conference we were allocated a session on vulval disease. Liz Venner, Karen Gibbon and David Nunns spoke at the 90 minute session covering topics such as vulval skin care, VIN, vulvodynia and common skin conditions including lichen sclerosus, and dermatitis. The session was well received with over 600 delegates attending in a packed out hall. There was a global audience and questions focused on VIN treatments and different types of emollients. We were also given a stall to promote the work of the society, the Sheffield 2017 meeting and encourage membership.

David Nunns

BSSVD 2 Day National Scientific Conference March 2016

This was held in Cornwall, at the Headland Hotel, situated right on the cliff tops in Newquay, and started with a wild storm and wild seas and ended with bright sunshine and blue skies. The main conference was preceded by a one day primary care vulval study day, attended by 53 delegates, mostly GP’s in the south west, but also some practice nurses and woman’s health physiotherapists. The main conference was attended by over 100 delegates from all over the UK as well as Eire and Australia and New Zealand. A broad range of topics was covered including long term management of LS, Behcets, Hidradenitis and perianal disease from the perspective of a colorectal surgeon. The gala dinner was held at the Eden project and delegates enjoyed a champagne reception in the tropical biome before sitting down to a 3 course dinner.

Liz Venner

Smears Without Tears

The Vulval Pain Society’s self help guide on having a cervical smear is available using the following link: VPS HELP

Liz Venner

Vulval Nursing Curriculum Development

The BSSVD values the role of nurses within vulval clinics and recognises that this role is underdeveloped within most existing services. There is a need to develop Clinical Nurse Specialist (CNS) links and a training programme. If you are a CNS or work with a CNS who is interesting in developing this role in terms of defining educational and training resources please can you contact Lisa Wallace Dermatology Nurse Specialist (Bradford Teaching Hospitals NHS Foundation Trust) on Lisa.Wallace@bthft.nhs.uk

David Nunns

Epivin - News About A Study

Chief Investigator - Professor David Luesley: davidluesley@nhs.net

Co-investigator - Mr Jason Yap: j.yap@bham.ac.uk

EPIVIN is a phase II, double blind clinical trial evaluating the efficacy of topical EGCG ointment (Veregen) in the treatment of women with HPV-induced vulval intraepithelial neoplasia (uVIN). The trial is jointly funded by NIHR, under the RfPB scheme, and Medigene, the German Biotechnology company that manufactures Veregen. EPIVIN is currently a single centre trial, with patients being recruited at City Hospital, Birmingham. The trial aims to recruit 56 patients, each receiving a 16 week course of either Veregen ointment or placebo, with the primary objective of determining whether topical application of Veregen can induce histological resolution of uVIN when assessed 32 weeks following the start of treatment. Within the first 18 months the trial has recruited 22 patients with overall positive feedback from patients. The EPIVIN trial management group are now exploring the possibility of expanding the trial to include additional centres with the aim of extending the geographical area in which the EPIVIN trial is available to uVIN patients across the UK. The trial will be open to recruitment until 31st September 2017.

To request a protocol or to find out more about the trial please get in touch with the trial team:

Trial Coordinator - Baljit Kaur: j.yap@bham.ac.uk

or

EPIVIN@trials.bham.ac.uk

Tel: 0121 414 5102

Tel: 0121 414 5102

Z-Plasty - Offer From Jonathan Frappell

Jonathan presented his work at the recent meeting in Cornwall. This is his kind offer: "I know that people feel understandably anxious about doing the Z-plasty for the first time without any support. I would be very happy to assist any BSSVD member who thought they might like to try the operation on their own patients. I would just need to have an honorary contract for the day; there would be no fee or expenses required. Anyone interested is welcome to contact me by email jonathanfrappell@hotmail.com"

Jonathan Frappell

Vulval Course

You might be interested in the 6th BASHH Genital Dermatology Course—7 October 2016. For further details see BASHH website

Christine Bates

Guideline Group Update

Currently two guidelines are in progress. Erosive lichen planus guideline is led by Dr Rosalind Simpson. Other members of the writing group are Gudula Kirtschig, Ruth Murphy, Maggie Cruickshank, Suha Deen, Sue Cooper, Deb Mandal and Alexandra Williams . The process manual for this guideline has been established and reviewed by NICE. All other BSSVD guideline will need to be compliant with this process manual.

The second guideline is for VIN. This is being led by Dr Raj Naik. Other members of the writing group are Christina Founta, Michelle Mackintosh, Ursula Winters, Suha Deen, Christopher Sonnex and Deb Mandal. NICE has decided to close the NHS evidence accreditation programme and given a very short deadline to all organisations. BSSVD is committed to make the application for NICE accreditation before the short deadline.

Deb Mandal